Neurotribes
What is autism? A lifelong disability, or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is all of these things and more—and the future of our society depends on our understanding it. WIRED reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years. Going back to the earliest days of autism research and chronicling the brave and lonely journey of autistic people and their families through the decades, Silberman provides long-sought solutions to the autism puzzle, while mapping out a path for our society toward a more humane world in which people with learning differences and those who love them have access to the resources they need to live happier, healthier, more secure, and more meaningful lives.
Stats for nerds
9recommend
19mentions
18people
2015–2025years
47% recommend53% neutral
Mentions per year
What Hacker News says
- People have written plenty of papers, theses, and books on this topic. You could start with the book Neurotribes which explores the history of autism in psychiatry comprehensively.
- Some recent books that really enriched my life:
- "Ace: What asexuality reveals about desire, society, and the meaning of sex" by Angela Chen. Really helped me understand my ace friends better.
- "Complex PTSD: From surviving to thriving" by Pete Walker. Helped me recover from a lot of trauma that was causing me duress
- "The Wizard and the Prophet" by Charles C. Mann. Helped me recover from anxiety disorder caused by climate change.
- "The Inner Game of Tennis" by W. Timothy Gallwey. As a former competitive gamer, this really helped me step back from competition and just enjoy the game.
- "Neurotribes" by Steve Silberman. Great book about the history of autism. Extremely sad but hopeful book.
- "Different Loving" by Brame, Jacobs, and Brame. A fascinating look back in time to the kink world of the 90s.
For fun I recently read and enjoyed: Foundation, Project Hail Mary (who's cutting onions in here), Going Postal, God Emperor of Dune, and Heart of Darkness.
- I have autism and only discovered it two years ago at age 33. I have been intensely researching it.
The book Neurotribes presents a very in-depth picture of the history of autism and the research and theories for the past century.
This is not saying that autism is not real, that it is not a thing to understand, or something that should not be researched. It is only saying that the idea that autism is On The Rise in a terrifying way, that it is something to be feared, is misguided.
As this article says, and as the book Neurotribes explores in depth, autism used to have much more strict criteria for diagnosis. Connor, the leading researcher of autism for much of the 20th century, was convinced autism should only cover the most severe cases, and he did not like the spectrum idea. As time went on and it was realized that many more persons may have some aspect of autism even if it isn't extremely severe led to the DSM making the criteria much looser. The authors of the DSM particularly noted that this may make it seem like the prevalence was increasing when in fact it was simply more widely diagnosed.
The reason for caution of using the term "autism epidemic" is that it spooked many parents into thinking there was a horrible plague afoot, and that it needed to be cured.
My current understanding of it in myself and wider society is that it has always been around, that those on the spectrum hold an important place in society, and that rather than finding a cure (if this is an epidemic) is more important than understanding autism and advocating for services to help those who have autistic children.
This absolutely does not seek to discredit the indeed heroic efforts many parents have gone to to support their children, in fact by being more precise about what is happening the hope is that autistics like myself can have even better outcomes.
- I want to strongly second this. Asperger was a complicated person with a complicated story in a brutal context, but ultimately a sympathetic and insightful man. His story is told in "Neurotribes" which is a thorough history of autism, and highly recommended.
- If you are curious about the history and current state of Autism Spectrum Disorder/Difference, Neurotribes by Steve Silberman was helpful to me. A fun thing I learned is that Oliver Sacks and Temple Grandin were friends.
- For anyone interested in the history of ASD, I highly recommend the book NeuroTribes [1] - I read this shortly after my son was diagnosed with ASD and it goes through a lot of history, up to the most recent DSM V definition.
